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FECAMM Presentation

FECAMM Federation, established on the 24th of March 2004, consists of non-profit associations that fight against rare diseases. It was founded with the objective of becoming a guide for rare diseases in Catalan territory, and...

· Unite rare disease associations together to be stronger and to be heard.
· Support federated associations and, through them, support those affected by rare diseases and their families.
· Promote the investigation and spread of techniques and treatments that alleviate these diseases.
· Collaborate with entities and public and private organisms that have similar aims.
· Promote the patients and their descendants' need for a correct diagnosis.
· Spread and promote knowledge about rare diseases on a social and educational level.
· Sensitize the general public regarding rare diseases.

 ORGANIZATIONAL CHART

 

 BOARD OF DIRECTORS

President         Francesc Cayuela (ANAC)
Treasurer   Eduardo López (NowKnow)
Secretary   Sandra Iglesias (Objetivo Diagnóstico)
Board member 1   Sara Salinas  (AELALD)
Board member 2   Bernardo Gámez  (ASEM CATALUNYA)
Board member 3   Maria Rodríguez (HP ESPAÑA) 
Board member 4     Pilar Quer (ACNEFI)
Board member 5   Francesc García (Associació Lisa)
Board member 6      Roc Torrell (ACAH)
Board member 7   Àlex Roca (Petits Superherois)

 

 HUMAN RESOURCES

Board of Directors
Federated associations
Volunteers:
Anna Cayuela
Montse Llonch

 FEDERACIÓ CATALANA DE MALALTIES MINORITÀRIES (FECAMM)'S STATUTES