Next Saturday 15th of May is MPS Awareness Day 2021. To commemorate it, MPS Lisosomales has proposed various initiatives around the country. The aim is to raise awareness for lysosomal disorders such as Mucopolysaccharidosis (MPS) and related disorders.
The entity encourages you to celebrate this day by posting pictures on social media, sharing and tagging with the hashtag #DiaMundialMPS2021.
Paper Boats to celebrate #DiaMundialMPS2021
MPS Lisosomales calls everyone to participate by sharing pictures with the entity’s paper boat as their protagonist with the hashtag #DiaMundialMPS2021.
Palau Molí de Reial in Elx lit up blue
Elx, a city in the Valencian Community, also celebrates MPS Awareness Day by lighting up the Palau Molí de Real blue, the corporate colour of MPS Lisosomales.
With this initiative, the city shows their support for this cause, and from the entity, we encourage everyone who sees it to share their pictures on social media using the hashtag #DiaMundialMPS2021.
Bilbao’s Bilbobus and Córdoba’s buses with MPS Lisosomales’ picture
Bilbao and Córdiba have also joined the celebration of MPS Awareness Day through their bus fleets.
In their cases, the public transport vehicles will run around the city with MPS Lisosomales’ picture.
From the entity, we encourage anyone who sees the buses to take a picture and share them on social media using the hashtag created for this occasion (#DiaMundialMPS2021).
MPS Lisosomales creates a Medical Committee to move forward on the research for this disease
The Spanish MPS association has created a unique medical committee, made up of medical professionals specialising in different aspects of the disease united to improve the quality of life of those who are part of the entity.
The COVID-19 pandemic has pushed the entity to reinvent itself to face social isolation, thus resulting in the creation of this committee to keep offering counsel and support to all the families affected by lysosomal disorders.
The committee consists of experts on different aspects of lysosomal disorders and aims to inform, raise awareness and give useful tools to treat and contribute to the well-being of the patients.
The various specialities on the committee are neurology, paediatrics, internal medicine, haematology, transplants, cardiology, otorhinolaryngology, gastroenterology, traumatology, orthopaedic surgery, research, nephrology, biochemistry-diagnosis, and others.
Besides offering counselling and accompaniment to all the families who are part of MPS España, the professional team of the Medical Committee is always researching and investigating the advances and news in the field of lysosomal disorders. For the entity, this means a great opportunity to be constantly up-to-date and to have access to a scientific and specialised team.