Event organized by Stop FMF with the participation of Associació Espanyola Síndrome de Sjögren, AESS; Associació Espanyola d'Afectats de Síndrome Antifosfolípid, SAF Espanya and Fundació Ahuce.
The Associació Catalana de Síndrome Fràgil organizes a virtual workshop “Our children’s futures” on March 4 at 7 p.m.
Enjoying an activity with other people is a good way to start conversations and relationships that, with time, can become friendships. In other words, creating a social environment to socialise with and get a feeling of comfort related to joy and satisfaction.
With your support, you will be helping the Associació Espanyola de l'Esclerosi Tuberosa in their fight against this disease.
From FECAMM we want to show solidarity with the people of Ukraine, and formalize our rejection of the war, as well as offer help in all possible ways to the minority disease organizations in the country.
Let’s point out and create changes for the 300 million people around the world who live with rare diseases, their families and caretakers.
To celebrate Rare Disease Day, the management committee has organized its 15th edition on Monday 28th of February at Caixa Forum (Av. Francesc Ferrer i Guàrdia, 6-8, Barcelona).
The 10th Rare Diseases Charity Run will be held next 27th of February 2022 ar 10:30 a.m. in Passeig Marítim de Badalona - Port Badalona.
